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Dear Fellow
BLUE
KNIGHTS
My name is Robert Pivonka, and I’m a member of the
BLUE
KNIGHTS - ALABAMA CHAPTER X. I
am writing to all chapters in the
United States
for your help. We have an Officer who desperately needs the help of the
BLUE
KNIGHTS.
This is their Story-
Jordan Stover
(Daughter of Officer Richard Stover) is a 12 year old girl who lives in
Trinity,
Alabama
and attends school at West Morgan Elementary. When
Jordan
was born in 1995 everything seemed great, and then she had her first
seizure at the age of 6 months. Jordan
started seeing doctors in Huntsville, Al, Birmingham, Al, Vanderbilt
University, the Shriners Hospital, and the Mayo Clinic in
Minnesota
. None of these Doctors gave the Stover’s a diagnosis other than
developmental delays with seizure disorder.
In September of 2007,
Jordan
was finally diagnosed with Glucose
Transporter Deficiency Syndrome (GLUT 1 DS). This is a condition
where the body does not transport enough glucose to the brain through
the spinal fluid. Dr. De Vivo at Columbia University, in New York City,
New York, identified this condition in 1991.
Jordan
is his 123rd diagnosed case World
Wide! Jordan and her mom traveled to
New York
in December 2007 so
Jordan
could become part of Dr. De Vito’s study group hoping to help him find
a cure. Jordan and her mom
will travel to China in April 2008 for Jordan to receive stem cell
treatments .Six treatments are required at a cost of $25,900 and that
does not include airfare, meals, housing, or transportation while there.
In addition to her injections
Jordan
is required to have physical, occupational, and speech therapies for 6
hours a day, 6 days a week while there.
The Stover’s have seen the quality of life improve in one
patient with GLUT 1 DS who received this treatment. She improved to the
point where she is now able to ambulate with only one cane and eight
months prior to receiving this remarkable treatment she was almost
totally wheelchair dependent. After talking with this family and seeing
their positive results the Stover’s feel that they owe
Jordan
the opportunity to gain a better quality of life and have the ability to
become a more “normal” teenager.
I am sending this to all
BLUE
KNIGHT CHAPTERS in the
United States
in hope that we will help this little girl. I truly believe that if each
BLUE
KNIGHTS member in every chapter
across the
United States
would send one dollar, but hopefully more through their Chapter, to the Jordan Stover Fund, Redstone Federal Credit Union,
220 Wynn Dr.
Huntsville
,
Alabama
35893
, The
BLUE
KNIGHTS would make a difference in this child’s life. We have
until April to raise as much as we can to support the Stover Family send
Jordan
to
China
so she can receive the treatment she so desperately needs. If anyone can
do this, I know the power of the
BLUE
KNIGHTS can! I know we will rise to
the occasion! Your prayers
for the Stover Family are also very much needed and appreciated.
If you
have any questions or concerns please feel free to E-mail me at Rjpivo@Bellsouth.net
Again, Thank
you all for your time and consideration in this matter.
Lieutenant
Robert Pivonka
Remember
- Among the Blue Knight members,
"There
are no strangers, only friends you haven't met."
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